Mighty Metabolites Page
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This handsome young man has a diagnosis of Barth Syndrome. This is a condition that causes heart failure early in infancy, low muscle tone and abnormal mitochondrial function. He and his family come from out of state every 1-2 months to see cardiology and the metabolism team. The mutlidisciplinary team we have allows him to see our psychologist to monitor his development, his dietician (Fran Rohr, RD) to monitor his growth and careful adjustment of diet and supplements. In addition he sees myself (the metabolism NP) and one of our attendings (Dr. James) each visit to caefully monitor his growth and development and overall care in association with our other team members and other specialists within the hospital.
In addition to the close dietary, medical, and developmental monitoring of each child, care of the whole family; their emotional, social, and financial situation is equally important for us to understand in order for us to then provide the best care to them and their child.
Thank you for considering a donation to our team. Each dollar helps us be better able to provide supports for the children and their families.
Boston Children's has been nationally ranked as one of the best pediatric hospitals for almost two decades. They care for more than 1700,000 patients every year - many with health problems no other hospital in the world can handle. Your donation gives sick kids a chance to get better!
My sponsors to date:
|April Wilmar||$100||You are a special gift to this world, Leah. You help so many children and we love you. We sooo wish we could have walked today! Love, April, Shawn, John Thomas and Ryan|
|Karen Costas||$25||have a great walk!|
|Ann Thompson||$25||Bumping your total a bit higher! All you do is just as rewarding as should be!|
|David Guy||$175||Thank you for all your assistance and compassion with our daughter ~ it's greatly appreciated!|
|Maria Salazar||$1,000||On Behalf of Alejandra Salazar, for all you do for her and for our family. Thank you so much!|
|Annie Richards||$50||Go get em Leah!!!!!|
|Georgia Olson||$25||Go Leah!|
|Barbara and Thomas Fitzgerald||$50|
|Tricia Yee||$50||We'd be lost without you. xo|
|Stacey Tarrant||$150||Sad I can't be there. Have a great time!|
|Jeff Hecht||$100||Great Work Leah|
|Harvey Levy||$200||You are great, Leah!!!!|
|Tejpreet Kalra||$500||You are Awesome Leah! Thanks for being there.|
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